My Near-Death Story
In mid-December of 2010, I started having trouble with pain in my upper left back. There was severe pain under my left shoulder blade running down my arm all the way to my hand. After weeks of treatment to try to relieve the pressure on the pinched nerve in my neck, I called Dr. Eric Amundson of NewSouth NeuroSpine in metro Jackson, MS for an appointment. A friend in choir at church recommended NewSouth. I met Dr. Amundson on December 28th. After describing my symptoms and what we had done to treat it up to this point, he said that he was pretty sure that I had a bad cervical disc that would need to be repaired. He said that what I described as my pain and what I could do to relieve it somewhat could have come straight out of a textbook. He said we could get the surgery done before the first of the year if it would be financially beneficial to me. I decided to wait until after our wedding anniversary, which is January 4th.
We did an MRI of my cervical spine on January 3rd,
which confirmed that I had one herniated disc and one bulging disc in my neck. Surgery
was scheduled for January 5th, 2011. Dr. Amundson did my surgery. I
awoke from that surgery in the recovery room and stayed there for several hours
while the hospital found a free bed for me. I did my best to entertain myself
in the recovery room. They had the monitor showing my vital signs in front of
me. I would hold my breath to watch the numbers change. I would also try to
speed up and slow down my heart rate. From the time that I awoke in recovery, I
had no pain in my neck or back, including the 4 inch incision in the front of
my neck. I didn't even have to take Tylenol after the surgery and it was a
complete success, relieving the pressure on the nerve that runs down my arm to
my hand. After a few months I was released to get back to my normal activities.
Fast forward to the end of December of 2011. On the morning
of December 30th, 2011, I woke up with extreme pain in my lower back
and going down into my right leg. The pain was so severe that I could not get
anywhere close to standing or laying straight. I went to see our chiropractor
because I knew that I could get in quickly. She looked at me for about 2
minutes and said that I was beyond what she could do. She made a phone call and
got me in for an MRI of my back. While
we waited for the results, she said to go to the emergency room if it wasn't
better the next day. The next day it was worse, so we went to the emergency
room. They did a CT-scan of my back. They found bad discs in my lower back. The
scan also showed a gallstone that the doctor said would not cause me any
trouble and a strange spot on my left lung. After a while, they sent us home
and we scheduled an appointment with Dr. Amundson. One of the things I like
most about Dr. Amundson is that he is NOT a cut-now-and-ask-questions-later
surgeon. He scheduled me for a series of Epidural Steroid Injections (ESI) in
my lower back. We did the first injections on Thursday, January 5th,
2012. It was several days before I noticed a change, but did note that it was
better, but still not great. I found that I could sleep and survive ok in
certain positions in the recliner. I went back to work on January 16th.
Physically I wasn't ready but felt I couldn't afford to miss more time. I was
completely drained by the end of each day. The next set of ESI was scheduled
for Wednesday, January 25th.
On Tuesday night, January 24th, I got a headache.
I took some Tylenol and didn't pay much attention to it. Wednesday morning, we
got up and went in for the ESI. The injections went in around noon. I wasn't
allowed to drive for 24 hours, so I had planned to take Thursday morning off
and go in to work after lunch. At lunch Thursday, I wasn't feeling too great,
so I worked from home for the afternoon. Thursday night, the headache came
back. I suspect that the headache was probably masked on Wednesday by the ESI. When
I woke up Friday morning, I had the worst headache of my life. I've had
migraines since junior high school, but this was far worse than anything
before. I sent an email to work and told them I had a terrible headache and
would be in later. Just before noon I started throwing up and Debbie said we
were going to the emergency room. I was feeling too bad to argue, plus, I knew
she was right. We went in to the emergency room at Baptist Hospital in Jackson,
MS. They started running tests on me, including MRIs and CT-scans of my head. Over
time I lost track of all of the tests that they ran. They also started pumping
large doses of multiple pain medications into my IV. I found it amusing that
the doctors were amazed that I was awake and alert and still in pain with all
they were pushing into my body — Toradol, Phenergan and Morphine, and Delaudid.
After a while, they moved me to a room and continued the tests from there.
Let me take a minute to describe this headache. It felt like
someone had put a headband around my head that ran across my forehead, down
over my ears, to the back of my head AND they were tightening it like a
tourniquet.
While I was out having tests the next morning, Debbie posted
this status to Facebook:
Debbie Facebook - January 28
at 8:08am
Larry has left for his MRI. He had
a rough night. No relief for the headache and threw up throughout the night. He
is exhausted. Your prayers and words of encouragement mean so much to us.
Debbie Facebook - January 28
at 8:52 am
God blessed me with an amazing lady
who came to change Larry's bed this morning. She is a prayer warrior and we
spent time claiming healing for Larry. This is what I call GOD'S REFRESHING
RAIN when he sends me little reminders that He is surrounding us, going before
us, and loves us so much! He has this!!
Dr. Amundson had been called in as my doctor because of the
prior back problems. Dr. Amundson called in Dr. John Davis, a brain surgeon, to
assist in my case. The scans of my brain told the doctors that I had either a
tumor or an abscess deep in my brain. They gave me size numbers, but basically,
it was about the size of a large grape. After some more tests, they couldn't
narrow it down any more and said that no matter what it was, the next step was
surgery. I mostly remember Dr. Davis because his in-laws used to live in our
neighborhood and we talked a little bit about them. Dr. Amundson's nurse is
Jill and we have thought the world of her since the first surgery a year before.
Around 4:00 on Saturday afternoon, Jill started making phone calls to their
surgical team members and within an hour had NewSouth's top surgical team lined
up for surgery on Sunday morning. We saw this as our first miracle of many.
Sunday morning came and surgery prep began. They told us to
expect surgery to take a couple of hours and then we would have a couple of
days in ICU followed by several days in a room. My mom and sister came up from
south Louisiana to be with Debbie during the surgery. I didn't say anything at
the time, but it really bothered me that they were there. My dad died almost
five years before after a long bout with Alzheimer's. The last time we all saw
him alive, he was in ICU after having a subdural hematoma (bleeding inside the skull)
drained. Two days later he died. I look
very much like my dad did at my age and I didn't want them to see me looking
like that.
I have had a few surgeries before and always when they would
give me "a little something to help you relax", it would knock me
out. I guess because my headache was so bad, this time it didn't do that and I
was awake into the operating room. I remember thinking how cool it was with all
of the activity and equipment. Soon I was asleep and in surgery. Somehow,
Debbie ended up in a different waiting room than the hospital staff was
expecting. The surgery took much longer than expected, but they didn't know
where to find her to give her information. As is her custom, Debbie spent a lot
of time in prayer claiming 1 Peter 5:6-7: "Humble yourselves,
therefore, under God's mighty hand, that he may lift you up in due time. Cast
all your anxiety on him because he cares for you." She said that God
spoke two things into her heart during this time. The first was that there were
a lot of people praying for us and that she could relax and rest in His hands. The
second was to sit back and watch what He would do. During this time, Debbie
received hundreds of messages from people literally all over the world saying
that they were praying.
Debbie Facebook - January 29
at 1:18pm
Larry is still in surgery. 3+
hours.
I can't tell you what it means to me to see all the text messages and FB
comments that so many are praying for us. My heart overflows!!!
After six hours in surgery, Dr. Amundson found Debbie and
told her that surgery was complete, that the spot in my brain was an abscess,
and that Dr. Davis had saved my life. He said that just as they got to the spot
in my brain, the abscess ruptured. If they had been a few minutes longer
getting to it, the rupture would have flooded my brain with toxic infection. As
it was, the infection spilled out through the opening that they had made. He
told her that I would probably have problems with walking, speaking, vision,
and putting thoughts together. I never had any of those problems. (I did use a
walker for a few days to help with balance as I got up and down. My eyesight
was actually better for a while, but it settled back to "normal"
after a few days.)
My first memory after the OR was in the recovery room. I
could feel a nurse putting one of the post-surgery compression stockings on my
left leg and I lifted my leg to help. The unseen nurse said, "Look at
this. Six hours in brain surgery and he's raising his leg for me." A
second unseen nurse told me, "Relax, honey, we've got this." I
remember thinking it strange that she said I had been in surgery for six hours
when the surgery was only supposed to take two hours. I also remember lifting my leg when they put
the second stocking on my right leg, but that is all I remember of the recovery
room. The next thing I remember is being rolled through the halls from recovery
to ICU.
Debbie Facebook - January 29
at 6:41pm
Larry is in ICU. I got to see him. Hold
his hand. He squeezed mine and said I LOVE YOU. Sweet music to my ears. My
heart rejoices!!!
My soul shouts HIS praise!!!
My day nurse in ICU was Carla and my night nurse was Angela.
They were both great! I was extremely tired, but had trouble sleeping once the
anesthesia began to wear off. The incision area on the back of my head didn't
really hurt, but leaning it back on the bed to try to sleep was uncomfortable. The
other problem that I had at this point was a bad taste in my mouth and lack of
appetite caused by the antibiotics that they were pumping into me. My main
entertainment in ICU was with impressing the nurses. About once an hour they
would come in and ask me my name and where I was, testing my alertness and
awareness. Not only would I tell them my name and that I was in bed 5 in ICU at
Baptist Hospital, but I would tell them their name and what day and date it
was.
When Dr. Byers, the Infectious Diseases doctor, came to
check me out in ICU, he examined me for a while and asked, "How long have
you had the heart murmur? It's not in your chart." I told him that was the
first I had ever heard about it.
As I said before, because of the antibiotics, I wasn't
interested in eating, but I told Debbie I thought that a popsicle would be
good. She asked the nurse if we might could find a popsicle somewhere. I also
told her that a grilled ham-and-cheese sandwich sounded good. I don't know that
I'd ever had one, but the thought sounded good. The second night in ICU, Angela
brought in a male orderly just after dark and they turned me sideways and
propped me up on pillows in the bed so I could sleep without my head resting on
my incision. I slept really well there for about 5 hours. Angela came in again
about 4 in the morning with Skylar B, a different male orderly, and they gave
me a bath. I'm pretty sure that's the first bath I've ever had in bed. Angela
said I needed to be fresh and clean for Debbie for the first visit of the
morning. After the bath, she brought in a cherry popsicle in a cup so I could
eat it with a spoon. She had sent another nurse to find it while I was getting
my bath. It tasted really good and then I slept for a little while again.
Tuesday afternoon, they moved me to a regular room and told
us we would be there at least through the weekend. When the abscess ruptured,
the doctors took some of the infection and grew it in the lab, then tested
various antibiotics against it to see what was the best method for continuing
to fight it. They never figured out what kind of infection it was, so they used
a cocktail of antibiotics for a few weeks.
Debbie Facebook - January 31
at 4:43pm
Larry told the physical therapist
that he was glad to be in a room. Glad because I could be with him all the time
and glad because when he woke in the middle of the night I would be here and he
could see my face…
Yeah, it works both ways!! I am GLAD, too!!!
The doctors figure the infection got in through that spot
that I mentioned in my left lung. We have known that spot was there for a very
long time; we just didn't know what it was or how dangerous it could be. I had
a bad lung infection in about 5th or 6th grade. For my
entire adult life, the spot has shown up on x-rays as a dime-sized spot that we
assumed was scar tissue from that childhood infection. As it turns out, the
spot was probably the cause of that childhood infection, not a result of it.
Warning: this paragraph is going to be boring and technical.
The spot on my lung was a Pulmonary Arteriovenous Malformation (PAVM). It's a
problem caused by a genetic trait called HHT. So basically, it was a birth
defect. Normally, blood flows through your lungs from arteries, through
millions of tiny capillaries, into veins, and out into the body. The
capillaries serve to filter the blood, catch blood clots, and oxygenate the
blood for your body. In a PAVM, your blood flows straight from arteries to
veins, missing the filtering that is normally done by the capillaries. I copied
this from HHT.org: "Shunting of air, blood clots, and bacteria through
pulmonary AVMs, thus bypassing the filtering capabilities of the lungs, may
cause transient ischemic attacks (TIAs), embolic stroke, and cerebral or other
abscess." Some of the symptoms of the HHT trait include frequent
nosebleeds (that's me), "strawberry patch" birthmarks (that's me),
spots on the skin that look like brown moles but they are red (that's me), and
AVMs (me, again). Of course, we didn't know all of this before! Since the HHT
and AVMs are hereditary, I have wondered since all of this happened with me if
my dad's subdural hematoma might have been caused by a cerebral AVM. I guess
we'll never know for sure.
A physical therapist came by to see me a couple of times in
the hospital and an occupational therapist came by once. They pretty quickly
decided that I didn't need them, so they left me alone.
I had not really had time to think about it before, but
during the middle of the night Wednesday night, it occurred to me that I had
just been through a life-threatening illness. In my mind, I had come through
it, but the doctors and nurses said I was still there. During the night, Debbie
would play music on her phone for us. It helped the time pass for me because I
would usually go to sleep around 7:00pm and wake up around midnight. Debbie had choir music from church playing on
her phone Wednesday night and the song "One Day Jesus" came on. I
have heard people talk about meeting Jesus during their near-death times, but
that didn't happen to me. I remembered while I was in surgery feeling like I
was walking down a road on my way to heaven. I remembered thinking that I
wasn't ready to be there. In the sense of salvation, I am ready, but in the
sense of having been the person that I was supposed to be I was not ready. The
song "One Day Jesus" says,
One day Jesus will call my name.
As days go by I hope I don't stay the same.
I wanna get so close to him that it's no big change
On the day that Jesus calls my name.
Even though they had told us to expect to stay through the
weekend, the doctors came in on Thursday and said that I was doing so well that
they were going to go ahead and send me home. Debbie got training on how to
administer my antibiotics through the PICC line they had put in my arm while I
was in ICU. It's basically a "permanent" IV line. The line was
inserted in the artery in my right arm just in front of my bicep muscle and ran
all the way up past my collar bone almost to my neck. Thursday evening, we went
home and our home health company brought medications and supplies for us.
Debbie Facebook - February 2
at 4:26pm
Larry is home!!!
We both had tears in our eyes as we drove down Lakeland. Thankful to be able to
make that drive together again realizing how close we came to losing him.
Giving thanks for the miracle that he is home 4 days after his brain surgery.
TO GOD BE THE GLORY GREAT THINGS HE HAS DONE!!!
Debbie Facebook - February 3
at 1:16pm
I think Larry's status from this
morning says it all…
Listening to the rain falling outside my bedroom window, the most peaceful
sound in this world! Thank you, Jesus.
Although he had to sleep in the recliner in our room, it was good to be
sleeping at home last night. The IV antibiotics have been easy so far. My
nursing skills are increasing. Again, your continuous prayers on our behalf are
PRICELESS!!
I lived most of the next few days in the recliner in our
bedroom. I used a walker for a day for balance when getting up to go to the bathroom
but mostly stopped after that.
Our 2nd daughter's
Facebook status: Heather - February 4 at 7:11pm
"Dad's having brain surgery in
the morning." Hard to believe it was this time a week ago I was hearing
these words! "Dad could be a House episode" were Josh's words a few
days after surgery. So thankful that the doctors were able to remove the
abscess after a long six hour surgery on Sunday morning. Thankful for everyone
who has prayed for my dad and family over the last week. Thankful for God's
protection over us all the past week. One brain surgery, two nights in ICU and
2 more days in a hospital room dad was able to go home! Please continue to pray
for dad as he continues to rest and heal, mom as she plays nurse giving dad
antibiotic cocktails in his picc line, for Rachel, Ashley and I as we are far
from home, and the lil guys as they are home helping mom and dad on the road to
recovery! I love you team Clegg! Also pray for the doctors as they monitor a
smaller spot that we pray antibiotics shrink and as they look at dads AVM.
Debbie Facebook - February 4
at 7:53pm
I helped Larry with his shower. He
said he sure does appreciate the small things in life such as a warm shower,
clean hair, clean clothes, and deodorant so that he doesn't smell too manly. He
is resting now. His energy level is still very low. He is having some problems
with the vision in his left eye. Getting from bedroom to living room wears him
out.
He has a long road to recovery but we are so thankful to be on that road. Thank
you, Father, for giving us more days to journey together.
(Comment from a dear friend) Shaunna
A. I know he is so happy to be home
with all of his favorite people! God is so very good to us to let us keep our
sweet loves! Every day is a great blessing. I know that both of you know this. You
have built an amazing family & life together. Can't wait to see what's
next!
Thank you Lord for all the answered prayers they have received & all that
are yet to come. Thank you for peace & joy in the midst of chaos &
uncertainty. Thank you for the way you love us all so well!
Our friends Marty and Paula came over Sunday afternoon,
February 5th, to visit for a while. Debbie and Paula sat at the
kitchen table and Marty and I talked in the living room, where I was in the
other recliner. I noticed after a while (around the time the Super Bowl
started) that I was feeling kind of funny and just decided that I was tired. Marty
kept looking over at the ladies in the kitchen with a funny look on his face. After
a little while Marty and Paula left. I watched the football game in the living
room recliner, mostly watching with one eye open and one eye closed. I had
noticed that since surgery, the vision in my right eye seemed to be very clear,
while my left eye seemed about the same as before. Heather, our second
daughter, and I love to watch football together and when we can't be together,
we text a lot or converse via Facebook. We exchanged a few text messages during
the game, but it just wasn't the same. When the game ended, I went to the recliner
in the bedroom and went to sleep.
Debbie Facebook - February 5
at 7:34p
This time last week I was at
Whataburger with Heather and Colin trying to grab something to eat between ICU
visit times for Larry. I had seen him for only a few minutes in ICU right after
surgery. As I started to give thanks for the food and God's blessings of the
day, my mouth would form the words THANK YOU and my lips would move but my
heart was so overwhelmed with joy that no sound was coming forth. Instead I
cried tears of THANKFULNESS…
Tonight as I reflect back just one week ago my heart is still crying tears of
THANKFULNESS!!!
When we woke up Monday morning, I had a bit of a headache
and was running a low-grade fever. Debbie also said that I was not as
responsive to her as I had been before. Debbie called the doctor's office and
they said to head back to the Emergency Room.
When we got to the ER, they did an MRI of my head and we
waited. After a little while, the nurse came in and said that the abscess was
back and they were going to re-admit me and the doctor would be around in a
couple of minutes to answer any questions we might have. This was at 9:40 on
Monday morning. By 12:30, we had still not seen anyone and I was getting a
little antsy. Debbie went out to the nurse's station to try to find out what
was going on. The nurse that was there said she didn't know anything and that
our nurse was gone to lunch and she would have her come see us as soon as she
got back. Around 1:30, our nurse came wandering in. Debbie asked her about the
test results and plans. The nurse was surprised that the doctor had not been in
to see us. They eventually got us into a room. Dr. Amundson said the abscess
wasn't "back", but that the MRI had shown the "hole" that
was left in my brain where the abscess had been. They put me on a group of
antibiotics to fight whatever infection was causing my fever Many, many tests were run over the next few
days.
Debbie Facebook - February 6
at 10:03pm
The Lord your God is with you,
he is mighty to save.
He will take great delight in you,
he will quiet you with his love,
he will rejoice over you with singing.
(Zephaniah 3:17)
On Tuesday February 7th, a new doctor came into
my room. He introduced himself as Dr. Weddle, a neurologist. He asked if he
could sit on the sofa while we all chatted. He and Debbie sat there. I, of
course, stayed in my bed. He did a
little small talk for a minute or so and then said, "So you had this
stroke and…" he just continued on with something. This was the first we
had heard about a stroke, so we stopped him and told him to back up a minute. He
told us that I had had a very, very mild stroke and that the blood clot had
lodged exactly between two lobes of my brain, so I should have no ill effects
from it. He explained to us the difference in a stroke and a TIA (transient
ischemic attack) and said that what I had was a full stroke. He went through
all of the risk factors for stroke with us. I've never been in any of the risk
factor groups, so the doctors assumed that the clot "snuck" in
through my AVM.
Debbie Facebook - February 7
at 7:49pm
"Come to Me, all who are weary
and heavy-laden, and I will give you rest. Take My yoke upon you and learn from
Me, for I am gentle and humble in heart, and YOU WILL FIND REST FOR YOUR SOULS.
For My yoke is easy and My burden is light."
(Matthew 11:28-30)
We had a long night last night. Larry had severe pain in his upper back between
his shoulder blades. This made each breath painful. In the wee hours of the
morning, he was able to finally rest after they gave him a muscle relaxer. This pain has continued today. The doctor is
concerned that he has a fever even with all the antibiotics they are pumping
into him. They are also concerned about this new pain. The doctors are seeking
answers. More MRIs, blood cultures, etc. Trying to find source of infection. We
are thankful they are diligently seeking answers.
We are both very tired. Praying for a good night of rest. I know that many of
you have sore knees from all the time you have spent in prayer on our behalf. I
don't have words to tell you how much your prayers, words of encouragement, and
acts of kindness mean to us. God has poured out His love for us through you.
Thank you for being His vessel!
Karen W. We love you both
and are truly burdened for all that everyone is going through.
Chantelle A.We don't get
tired of praying. It is always an honor to stand in the gap for someone. You
would do the same for any one of us.
Debbie Facebook - February 8
at 10:54pm
My help comes from the Lord,
the Maker of heaven and earth.
(Psalm 121:2)
This verse is written on a big wall plaque in Larry's hospital room. What a
great reminder for us!!! The CREATOR of this great big world is the same
CREATOR of each of us and is our HELPER!!!
We both had a good night of rest last night. We know God heard your prayers!
Today has been a better day. Less pain. Very little fever. More alert. We even
had a short date time sitting on the couch together! (treasured time)
Larry's incision from the surgery is healing nicely. The doctors still need to
find the source of the infection. They are still trying to determine the best
way to treat his infection. These things will determine how long he will be in
the hospital… Days or weeks. Keep praying! Tonight please pray for another good
night of rest and for God to give the doctors EYES TO SEE the infection.
Blessings,
Debbie
Larry Facebook - February 15
at 12:37am
I may have never seen the road
That I am walking on.
But I know the one who built the road
And he never lets me walk alone.
During this stay, the Infectious Diseases doctor ordered a
sonogram of my legs and heart. He was checking my legs to watch for blood clots
and my heart for the murmur that he had heard the week before. He came in later
and listened for a long time to my heart and told me that the heart murmur
didn't show up on the sonogram and that he couldn't hear it any more, but he
knew it was there before.
I had a number of good visitors over this stay, but I
particularly appreciated my "old" friend Mark Square driving up from
south Louisiana and my brother Roni driving in from Houston, where he was
working.
The doctors increased me to 3 antibiotics via IV and sent us
home on February 13th after six days in the hospital. Our daily
schedule for the next several weeks was:
- At
6am, 9am, 12pm, 6pm, 9pm, and 12am, Debbie would connect one or two
medicines to my PICC line
- Depending
on the medicine, each one had to be disconnected 30 to 90 minutes later.
- Each
dose had to be refrigerated and set out 3 hours to warm up to room
temperature before being administered.
If you do the math, you can see that the longest period
during the day and night that Debbie didn't have something to do was 3 hours. After
a little while, the kids and I would get the meds out of the refrigerator so
she could get a little longer rest period.
Debbie Facebook - February 20
at 7:44am
Not by my strength, Lord.
Not by my strength.
Fill me up with You.
Fill me up with You.
I wish I could say this was always my first thought as the alarms and timers go
off especially during the night BUT as I focus on Him, I am thankful that He
supplies my needs. Larry and I are in our routine for the meds and are counting
down the days. We are starting week 3 of 6. Larry continues to grow stronger
and we continue to count our blessings. We are so grateful for our gifts of
more time together as a family, loving friends, and opportunities to serve our
Lord
Debbie Facebook - February 21
at 10:12pm
Larry saw the infectious disease
doctor this afternoon. The doctor was very pleased with his progress and all of
his blood work looked great!! (insert shouts of joy!!)
We will continue our present course. We have 4 more weeks of the IV antibiotics
at home. We will return to the infectious disease doctor in 2 weeks. If all
continues to look great then they will schedule the repair of the pulmonary
artery malformation sometime during the end of the IV antibiotic regimen.
We have a follow up appointment with the neurosurgeon on Thursday and another
MRI.
We are so thankful. Larry was able to walk into the doctor's office on his
own!! As we reflect on all that has happened in the last two months, our hearts
overflow with thanksgiving for all that God has brought us through. May our
gaze continue to remain steadfast on Him… TO GOD BE THE GLORY, GREAT THINGS HE
HAS DONE!!
A couple of years ago, a good friend of ours was badly
injured in a car wreck, and that got us to thinking about and praying about
buying short-term disability insurance. We did that back then and it sure was
nice to not have to worry about money while I was out sick. We found out over
time that the short-term disability didn't cover all of our income. Between the
generosity of friends bringing food, not having to buy gas to drive to work and
back every day, and other unexpected gifts, this gap disappeared.
On Sunday February 26th, I got to go see the kids
performing in "You're a Good Man, Charlie Brown". Several people told
me how impressed they were with our kids and how strong they had been as we've
gone through this trying time. They had been going to rehearsals several times
a week while I was going through all of this and they had held up very well. Their
performance was great! Joshua was Charlie Brown. D'Lynn was his sister Sally. Caleb
worked stage crew and Winnie helped with a number of things. We were so
thankful for the friends who made sure that they got to practice each night and
our Black Rose Theater family who loved on our kids during this difficult time
and invested in them.
I started running a low grade fever that day and not feeling
very well. Not really sick, just feeling more yucky than usual. The antibiotics
have made me feel pretty yucky all along. We went to the Infectious Diseases
doctor on Monday the 27th and did a lot of blood work and x-rays. The
doctor decided that I was having an allergic reaction to the meds. He stopped
one of the antibiotics. By Wednesday I was having more allergic type symptoms,
so he stopped the second antibiotic. On Thursday, he stopped the third
antibiotic and put me on a new one. The nice thing about this new antibiotic is
that it only has to be administered every 24 hours, so Debbie's nursing
schedule was greatly reduced!
I drove for the first time in seven weeks on Tuesday March
13th. It felt a little strange after being chauffeured by Debbie all
this time.
On the morning of Wednesday March 14th, we went back to
Baptist Hospital for a procedure to correct the AVM in my lung that the doctors
are certain was responsible for my brain abscess, emergency surgery to clean
out the abscess, and stroke. I explained the AVM a couple of pages back in a
paragraph with a warning that it would be boring and technical. Dr. Usey, a
preventive radiologist, was scheduled to do my procedure.
The procedure to fix this thing is to push a small catheter
into the main vein in my right leg, run it up through my right lung, through
two chambers of my heart, down into the left lung, and into the problem artery.
All of this is watched by the doctor (and me!!!!) through the marvel of x-ray
technology. Once the catheter is in the AVM, they push this really thin wire
through the catheter into the AVM, where it coils up and slows down the blood
flow. This really was the coolest thing to watch on TV that you can imagine. I
wonder if they could give me a DVD of the procedure?
Anyway, there were several times during the procedure that
the doctor stopped and said, "Hmmm." No, I didn't ask. I figured he
would tell me when he was ready. :)
The procedure was supposed to take about 30 minutes, but
went a couple of hours instead, partly because of problems guiding the catheter
through difficult turns in my blood plumbing.
Finally, we got two coils in and they sent me back to the
recovery area.
That night Dr. Usey came in with this very perplexed look on
his face. He even told us that he was "perplexed". He said that part
of the reason that it took so long was that he found an AVM pretty quickly, but
it was too small to be the one that we were there to correct. He said he
couldn't find the big one that we were doing the procedure to correct. He went
ahead and put the coils in the small one anyway. He said he wanted to do
another CT-scan in the morning so he could compare it to the one from six weeks
ago that he had been studying ever since. He didn't know if there were two AVMs
and one had been "hiding" on the first scan, or what other
possibilities might exist. He just wanted to look and see and told us that he
was available to do the procedure again in the morning if we wanted to do it on
the second AVM.
Some time during Wednesday evening, I told Debbie that I
thought he couldn't find the big, original AVM because I believed God had
already healed it. Our friend, Sandy said it very elegantly that night in a
comment to Debbie's Facebook status, "Prayers for a VERY clear picture of
what God has already done!" Debbie and I both prayed that all night.
The floor nurse told me that the CT-Scan was scheduled for
7:00 Thursday morning and I was awake and ready to go. They didn't actually get
there to take me downstairs until about 8:00. The man from
"transportation" that came to wheelchair me down to radiology is one
that we had met before. His name is Walter and he is an associate pastor at a
church in Canton. He sings, in this deep full baritone voice, while he wheels
patients around the hospital. January last year, when Debbie was discharged
from the hospital, he rolled her downstairs while singing "Blessed
Assurance". What a ministry!!
While driving me down to radiology that morning, he was
singing the old Gaither song "He Touched Me". He finished the chorus
just as we got to the CT room. (The chorus lyrics are below if you need a
refresher, but the last line is "He touched me and made me whole".) I
told him that it was the perfect song for my morning, described what I was
there for, and told him that we had been praying for divine healing.
They got me on the CT table and ready to get started. The
doctor came in and told the techs to keep an eye on me because I am a
trouble-maker. :) He went behind the little wall with them to watch as the
scans were done. They first did two without contrast and one scan with
contrast. The AVM shows up bright and clear with contrast!
After the scans were done, the doctor came around and stood
in front of me with that same perplexed look on his face and said, "That
huge AVM that we were trying to fix yesterday… isn't there." I told him
that I was expecting that. He also told me that the "new" small AVM
that he put the coils in yesterday was already clotting and shriveling up,
doing exactly what it is supposed to do, but very quickly. No surprise to
us!!!! Dr. Usey later told us that he had been studying the CT scans since
before the brain surgery in preparation for the repair and this was the largest
AVM he had ever seen. Later in the afternoon, he came to our room and told us
that he had spent a long time studying the original CT scan and the one he
supervised this morning. His explanation: GOD!
AVMs are hereditary and you are born with them. We are quite
humbled that God chose to heal this particular "birth defect" in this
way and at this time. We can only call this a miracle!!
He Touched Me (Bill and Gloria Gaither)
He touched me, Oh He touched me,
And oh the joy that floods my soul!
Something happened and now I know
He touched me and made me whole
On Thursday March 22nd, Dr. Byers took my PICC
line out. He left me on oral antibiotics for a couple of months, even though
there has been NO sign of infection for a long time. He laid out a treatment
plan after the initial surgery and hasn't known what to do but continue with
it.
For years I have had a big problem with the word
"deserve". You know, "You deserve a new car" or "You
deserve a vacation". What we "deserve" is far below what we
want. Going through all of this, I have really struggled with why God has
chosen to bless me, while others who "deserve" much better continue
to suffer (and sometimes die). We had three close friends that died suddenly
during the weeks that I was sick. That honestly caused me a good bit of what
they call "survivor guilt". While doing my daily Bible reading on
March 27th, I read John 5:21, which says:
And just as the Father raises
the dead and gives them life, so the Son also gives life to anyone He wants to.
(HCSB)
I had to decide at that point that if the Son wants to give
me life, that should be good enough for me.
Debbie Facebook - March 29th
Two months ago today I was sitting
in the waiting room while they did surgery on Larry. We were not sure if he had
a brain abscess or a tumor. A two hour surgery turned into a six hour surgery. Today
we walked three miles together. We know that God has done a miracle in Larry's
life. TO GOD BE THE GLORY… GREAT THINGS HE HAS DONE!!!
NEVER ONCE by Matt Redman kind of sums up how we feel. We cannot begin to find
the words to thank all of you for your prayers, words of encouragement, meals,
and other acts of kindness on our behalf. We feel very blessed and loved.
NEVER ONCE
by MATT REDMAN
Standing on this mountaintop
Looking just how far we've come
Knowing that for every step
You were with us
Kneeling on this battle ground
Seeing just how much You've done
Knowing every victory
Is Your power in us
Scars and struggles on the way
But with joy our hearts can say
Yes, our hearts can say
Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful
Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful
Scars and struggles on the way
But with joy our hearts can say
Never once did we ever walk alone
Carried by Your constant grace
Held within Your perfect peace
Never once, no, we never walk alone
Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful
Every step we are breathing in Your grace
Evermore we'll be breathing out Your praise
You are faithful, God, You are faithful
You are faithful, God, You are faithful
Debbie Facebook - April 9 at
2:07pm
My gift from Larry. (Picture of a
glider with a “roof”)
I have cried such tears of joy
watching him build this for me. It will be a great reminder of all God has done
in our lives over the last few months!! I want to paint the words "Be
still and know that I am God" across one of the top boards. Over and over
I have heard God telling me "Watch and see what I will do!"
I sat on it last night and cried tears of joy while singing "Never
Once". It has become our theme song for this Odyssey.
Chorus:
Never once did we ever walk alone
Never once did You leave us on our own
You are faithful, God, You are faithful
You are faithful, God, You are faithful
On April 12th, I saw Dr. Amundson and he cleared
me to go back to work. He said that if one of his colleagues looked at the
latest MRI of my brain, they wouldn't know that I'd ever had an abscess or
surgery. He said he can only see the spot where the abscess used to be because
he knows where to look for it. He said there was no reason to restrict my
activities at this point.
I went back to work on Monday April 16th. The
company had a little breakfast get-together in my honor to start the day. My
friend Keith joked that I looked like I could do pushups. I asked him how many
he wanted and (again joking) said he'd like to see 10. I dropped to the floor
and did 10 pushups, just for fun. It really was easy! It has been great being
back at work and feeling useful again.
Debbie Facebook - April 16 at
9:20am
Larry's FB status this morning!!!!
Hi-ho
Hi-ho
It's off to work I go
So thankful he is able to return to
work today. BUT I miss having him at home!! I like hanging out with my best
friend all day every day!!!
Went to see Dr. Byers, Infectious Diseases, on Thursday May
24th. All my blood work was AGAIN clear and he took me off all
antibiotics. He wants me to come back periodically over the next 12 to 18
months to recheck my blood.
Many, O Lord my God,
are the wonders you have done.
The things you planned for us
no one can recount to you;
were I to speak and tell of them,
they would be too many to declare.
Psalm 40:5
Debbie has said that she now has some favorite seven-letter
words and phrases:
- Abscess
— Given the choice between Abscess and Tumor, this is an easy choice. When
the doctors told us it was one or the other, I was in too much pain to
care either way, but Debbie was grateful that it was "just" an
abscess.
- Praying
— It was amazing to us how many messages we got with this one simple word.
For some time, I have made a special effort to not tell someone that I was
going to pray for them, but to get right down to it right then and there. This
has continued. My prayer life has grown tremendously over the last few
months!
- Surgery
— Thankful that surgery was an option and for the wonderful surgeons that
God has gifted. Our family doctor who is a long time friend told us that
if he had to hand pick a medical team to take care of him that he would
have picked all the doctors that were a part of our medical team.
- Be
Still — God has shown us over and over the importance of BEING STILL and
resting in His presence.
- Friends
— We are so thankful for the blessing of Friends. God's love was poured
out mightily to our family through the gift of friends.
- Recover
— A beautiful word to hear after a loved one has been in surgery.
- Healing
— Means so much more than the physical.
Several people have asked if all of the problems in my head
were related to the back problems that I was having before. The only
relationship between the two is:
- The
back problems introduced me to my brain surgeon
- The CT
scan they did of my back at the end of December gave the doctors a really
good picture of the AVM in my lung.
Way back in high school and college, I was a runner. I
wasn't all that good, but I loved doing it. I started walking as part of my
recovery. I started with about 50 yards down the street and back. I eventually
worked up to a three mile walk about every three days. After a while, I started
jogging part of the three miles and by the end of May, I could jog the entire
three miles. On June 2nd, I ran the Magnolia Speech Sprint 5K race
held at Jackson Academy. I expected to make the run in about 37 or 38 minutes,
but finished at 33:05 which was good enough for 4th in my age group.
I was very pleased with my run. I plan to do more 5K runs. A couple of friends
have suggested that I will get the bug and want to do longer races, but I don't
expect that to happen.
Debbie Facebook - June 2nd
And he finishes!!!
Counting our blessings through my tears! 18 weeks post brain abscess/surgery!!
What a miracle!!! WE SERVE AN AWESOME GOD!!!!
Be joyful in hope, patient in
affliction, faithful in prayer. — Romans 12:12
As we have looked back at our journey, we have reflected on
a Proverb's 31 Ministries' post that Debbie had shared back on January 4th.
Proverbs 31 Ministries
When God allows extraordinary
trials for His people, He prepares extraordinary comforts for them. ~Corrie Ten
Boom {"For I am the LORD, your God, who takes hold of your right hand
and says to you, Do not fear; I will help you." Isaiah 41:13}
Little did we know at the beginning of our odyssey the
extraordinary trials that we would be facing in the days ahead but we rejoice
in the extraordinary comforts that our God provided for us. Our hearts continue
to be full to overflowing as we rejoice in all that HE has done. We desire to
share our story and give HIM the glory!!

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